Is Thank You Ever Enough?….

I keep threatening to do this thank you but I never know where to start, so I’ll just ramble and see where it takes me. I’m kinda clumping them all together because I don’t want one to appear to be more important than the other, each one has surpassed everyone else. I’m a sociable little bod usually so please don’t take my next statement as factious or glory seeking, I have quite literally received hundreds of messages etc over the last 10 months, a few of them containing empty promises. Hopefully those people and they know who they are, will never learn first hand how someone in my situation then and now build their hopes up at such empty promises, its very easy to build the hopes up of folk facing trauma or an ordeal and such empty solitude as I did and still do. I’ve admitted that in the very early days I couldn’t face nor was in a place to deal with visitors, it still is not known how I’ve even survived, my left ventricle brain stem ruptured, a part of my brain has died off, I had a massive brain haemorrhage, I was paralysed down my right side and could barely talk nor did I have much mental capacity as I was living in a fog but I’m talking about the later days. I’ve also admitted and apologised to those I’ve had to cancel due to bad days but again, they don’t fall into this category. I understand everyone has a life to live and their own challenges but when did folk become so flippant?! I’ve sat there waiting for the knock on the door only for it to never come! BUT I want to thank these people for not dulling the sheer luminous sparkle of the ones that have been there for me, the ones that have truly shone! It’s funny how some of the people you’d take a bullet for are the very ones pulling the trigger! I’ll never turn anyone in need away because I know what it truly feels like to be constantly let down and you’ll see an apology later on. Being let down is not a new lesson I’ve learnt but it’s a more profound one. So if I can help any of you guys in anyway then please, please shout as per!

First up is Wor Tom or as I’ve now renamed him, 00-Tom! I’ve told you all about him before, pragmatic, loyal, steadfast and unpretentious. Tom has done a great deal, he’s done all the stuff you wouldn’t normally think about in these situations, he’s been my constant liaison with work. In the beginning things weren’t clear for anyone let alone me or my Mam, there was in comprehension, shock and disbelief. Many of you might not realise I also work a few desks away from Tom and after a decade of service, he knows my managers very well, he was able to see a way to bridge the gap without work being intrusive at such a traumatic time, he spoke with my managers so that they understood the severity of what was happening and if I remember rightly I need to apologise to my fellow Sagelings for the short staff on TSL that day because as you can imagine, it wasn’t a ten minute chat! He still plays that role to this day, he still helps me understand protocols and procedures as well as continuing to be my never-failing friend. He still helps me with car stuff *groooooooan*, sharesave, legislations and even rocks up and fits a disabled access sign to the front gate to tell folk to keep our pathway clear after being blocked in a few times. Tom was also the person who came and got me at 9pm at night from Hospital the first time I was admitted because there was an ambulance shortage and he knew I desperately wanted to get home to see Dylan my pups first experience of snow. I must tell you a not so well kept secret and unfortunately for Tom, I somehow remember it very well, possibly because it’s so funny! The nurse was “helping” Tom put me into the wheelchair, I noticed we weren’t going that fast and I could hear Tom sounding rather out of breath, Tom, are you ok? The break isn’t on is it? Oh dear the helpful nurse had put one of the breaks back on without Tom noticing!! And it gets better! In the car park a gift bag handle broke, Tom picked it up but let go of me and there I was merrily rolling down towards the car park – Toooooooom! I only rolled a couple of metres but so so funny! So 00-Tom, I thank you!

Every good 00 agent needs a Bond girl so it leads perfectly to my next victim, Colette. Now my little pal doesn’t suffer fools gladly, in fact, if you are a said fool who happens to do her wrong then you’ll be ceremoniously called out on it and served your supper cold with a soupçon of fuck you, to me she is generous, passionate and creative. She has a devil-may-care attitude but is also meticulous. She’s my problem solver and sounding board but most importantly, she totally gets my dark sense of humour and understands where it comes from and never questions my beliefs. She understands my fears and usually wants to biff my ex’s because she can see what I never can, me for who I truly am, I’m oblivious! Colette was the first person I was ever brave enough to show my artwork to, we both have a love of the arts and she encourages that side of me, even giving me her daughters easy grip paint brushes in an attempt to banish my fear of never being able to paint again, she’ll always come up with a solution. Again, Colette was one of the only ones I’d let come see me in Hospital and in the early days at home. The day I was waiting to be discharged from Hospital the first time I clung to her and didn’t want her to go because I was frightened I’d never get home. She knew how much Dylan means to me as Amber dog means to her. Colette’s the friend that upon hearing I had to cancel my physio due to folk blocking the gates, promptly ordered a disability access sign and deployed 00-Tom with his power tools to fit it! Fnar! Fnar! It wouldn’t be a Colettestiment without at least one Fnar! Whether it’s making vagina like candlestick pottery, singing into a lemon squeezer or stargazing, she’s been right there when I’ve yanked on the chain – Thank you Poppet!

Talking about chains, next up is the living life like you’ve broke free of your leash, Victoria Dillon aka our Vicki. I always want to get Vic one of those superhero Lycra suit jobbies, she’s forever off on a crusade and like the Flash, moves so quickly that at the moment I feel like I’m stood still! She’s will-o-wisp, impossible to pigeon hole and she’s Thelma to my Louise or once was, things have changed somewhat, she’s seen my spontaneity vanish, not just now but due to events last year leading up to my injury, it makes me sad when I look back on all our adventures cos believe me, just going to B&Q can turn into a fun filled quest with us! I miss our sing songs in the car and getting lost but I love it when she’s in A-Team mode and putting a plan together, bouncing ideas about and putting the world to rights, we’ve both experienced more than we should have in our lives but then that’s why we “get it” I don’t remember much about being in Hospital but I remember her trying to hide her tears, the fidgeting and restlessness wasn’t solely her Parkinson’s that day. You may not know but Vicki is a Specialist Nurse and is no ones fool, I remember her challenging and questioning the Consultant the second time I was admitted and later went into shock, he was grilled like he was on Mastermind or standing in the dock. Vicki has been supportive to my Mam too and the pair of them are going to be causing festive madness in the next up and coming weeks, definitely not to be missed! The Vickster phones/texts me every day or so or pops round to see me and she’s tried so very hard to find that carefree person inside of me again, unfortunately even a trip to her house can be a military operation but she still asks me along for a drive or asks if I want to be apart of things, no matter how much I say no, she still asks. I even trusted Vic enough for her to teach me to put my head under the water and swim to the other side, anyone who is as fearful of water as I am will understand how much I truly trust her. If I asked her to push me all the way to Newcastle she’d say no, we’ll get a limo & that’s what I love about her! Thank you Thelma!

Next up is Jayne, I’ve only known Jayne for two and a half years but she was one of the first to knock on my door when I felt as though I could hold audience. The totally crazy thing is that Jayne and I quite possibly played together on Leazes View, Rowlands Gill many many moons ago! I shit you not! Her parents still live there! She texts me every few days and has become accustomed to the daily trials and tribulations I face. Jayne may appear to be a little shy at first, not that I ever experienced that but I guess folk don’t get the chance with me, I’m like Doug the dog on the animated film Up – Hello, my name is Liz and you will like me! Jayne’s methodical, loyal, kind and hardworking, she also has a very strong shoulder to lean on and a good listening ear, though I don’t think much of her wheelchair pushing skills, let’s just say I got a very good view of Bensham as I found myself heading down the grassy bank of Saltwell Park, you know, I’m starting to see a pattern emerge here, I think it might be a good time to let everyone know I’m not insured and I don’t have a will! She’s as mad as a hatter and great at beach potholing! Thank you babe!

Now for Tracey, Tracey was the very first person besides the terrible trio that is Vicki, Tom and Colette,that I allowed to visit me. I knew her mind would never be at rest until she came and seen me with her own eyes. She’s so incredibly creative but chooses to to hide it somewhat so, like the little scamp that I am, I often have to out her! She can crochet like a beast, I still have Bessie the Unicorn from years ago and a fantastic artist! Her garden is like a little pixie kingdom. I met Tracey about 6 years ago when I worked for Tim Pearson at Orchard Vets, I was working at the Stocksfield branch that day and through one thing and another I stole her and she became a Hexhamite and a firm friend. Tracey is one of the most kindest and thoughtful people I’ve ever met, I truly wish I could show you the trouble she went to, to transport a miniature cake, it’s was wedged and balanced meticulously inside a Tupperware box with precision and not one bit of icing so merely touched the sides, that’s Tracey, she puts her whole heart into something and someone. I also have to mention her Mam June, June who upon hearing my first little go go scooter had gone to scooter heaven, was going to buy me a new scooter with her savings and be buried in a cardboard box, me and my Mam were both choked by such selflessness. Poco a poco se anda lejos! Thank you lovely!

Now I can’t leave it there, Teresa my longest serving friend, I think she should have had a gold watch and more by now, to be so far away (Worcestershire, not Middle Earth) and to learn the news via text with limited details, well, let’s just say she was fraught. I spoke to her on the phone as well as I could back then and she came and saw me a short time later, I saw her shoulders instantly relax when she saw me, I was still Liz. Kathryn, I have to make an apology to Kathryn, a massive one, her Dad passed away last year before my big haemorrhage and I was still being misdiagnosed, I was having TIA’s every 1-2 days and just off the planet, I really wasn’t plugged nor thinking straight and I put her off coming to see me because of the state of our undecorated house, I was always on the end of the phone but that’s not the same and I feel I let her down terribly. So Kathryn, I truly am sorry. I miss our walks with the boys (Dave is Dylan’s BFF) and I miss our chats, I hope that one day we’ll get to go the beaches again and walk along the river putting the world to right while the dynamic duo run and tumble along. Penny was my partner in crime at Orchard Vets, from the day I sat the interview we hit it off, we’ve been through so much together, nob head boyfriends (mine), cretinous long term partners (hers), births, deaths and the ups and downs of a highly emotional job. The hardest part of leaving Orchard House and believe me, I felt wrenched and heartbroken, was saying goodbye to Penny, actually, we never actually said goodbye but you know what I mean! Poor Penny, my brain is such a tangled mess and there’s been a few times I’ve forgotten to text her back or press send, you’re not alone Pen, I promise you!

The finale – I find it incredibly hard to find the words to express to all my friends and well wishers how truly grateful and thankful I am to have you all in my life, the support and love I have been shown is phenomenal, PHENOMENAL! I spend huge chunks of time trying to find a way of expressing how completely blown away I am, the encouragement and kindness is off the scale, the sheer abundance and enormity cannot be put into words or gesture, thank you just doesn’t feel enough, I’ve tried to find new ways of saying thank you and showing how truly blessed I feel to have you all in my life and there just is none! So to all you superb friends and well wishers out there who’ve taken the time to wish me well, to offer support, to check on me, to travel 30 plus miles to see me, who want the very best for me, who gets behind me and encourages me and urges me on …… THANK YOU! ❤️

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Wheels On Fire …. *Advisory Explicit Content* Sorry Mam!

Sorry it’s been awhile, it’s not because I’ve got nowt to twist about, don’t be so daft! In all seriousness I’ve been poorly with excruciating pain and with no other opinion than to take high doses of morphine which makes me vomit and then sends me into a comatose state. Unfortunately I can still feel the pain, I’m just too much of a space cadet to do anything about it, it’s pants, I know! Anyhoo, the time hasn’t gone without the odd calamity and adventure though! Of course not! This is me we’re talking about after all!

A couple of things to bring you all back into the crazy Lizzie loop. The car has gone but not without a fight! I cannot let the last sentence go by without a few expletives so cover your ears – fucking bastards! And that’s putting it politely! As always I have a tale to tell. I’m naming and shaming folk today so if you know them or see them about give them a great big cheer!

Firstly, my appointment with the Neurovascular dude at the RVI turned out to be an appointment with a Stroke Specialist, I use that term loosely because he was far from special, he was a pompous, arrogant, patronising arsehole! Hexham General failed to send my notes ahead so the Neuro dude unprofessionally read the first few words of the referring letter, Stroke Physician and didn’t read any further, he failed to see I was 38 and I’d had a head injury and haemorrhage that caused a stroke and he passed me on without my permission to the Stroke Unit to the above described arsehole. I was told by said arsehole that my account of what has happened to me was absurd and preposterous and I would not be sat in front of him today, I was told that no medically trained Physician would jeopardise my life by taking the risks I claimed whether I was at risk of dying or not, he challenged me but quickly shut up when I named the drugs used and procedures, he then moved on to slander me further and again challenging my account but my answers stumped and annoyed him. He then started to contradict himself and get aerated, he insulated me further and pointed to a spot I had on my hair line and asked if that was where the pain was, the excruciating pain that causes me to be on a cocktail of meds and topped up with Morphine, the inescapable deranging pain that debilitates me, the pain that feels like I’ve been bludgeoned and if that wasn’t enough, he sat there and said he thought I was courageous, admirable and outstanding to achieve as much as I have with so little rehab but he had 17 other patients to see worse off than me. The medical student sat with her head bowed in embarrassment, my Mam released the break on my wheelchair to push me away and I promptly knocked it back on again and said I have two pages of questions I want to ask, I then started to read out a few questions to a extremely shocked Consultant, who’s only reply was, I don’t know, those are questions for a Neurologist to answer, I agreed and said, that’s who I was meant to be seeing! And there I sat with my breaks on for 55 minutes until the tears of frustration beat me! Now my family and friends, hell, even my sworn enemies will tell you that I am most certainly not a oh woe is me kind of girl, I have never once in my darkest days ever muttered the words, why me, I never have in all my life, I take what’s lobbed at me, there’s no pity me in this hoose pet, you just get on and work through it, come what may! I told my GP the only time I ever want to see that man again is for him to apologise to me because what I told him wasn’t absurd or preposterous, it was very much fact and now that he has seen my notes, I’ve received a copy of the three double sided page letter to my GP and let’s just say his tune has changed somewhat, he does say he was met by an angry and frustrated young lady but on reflection it’s understandable. Aye, you arsehole! My GP is livid and said I am more than in my rights to write a complaint, Doctors and such likes tend to stick together or sit on the fence so this really did shock us, my current Consultant who referred me is also livid about the encounter BUT something great has come out of it, my case is so rare and so unheard of that it’s being presented in front of the Neurological review board and one Professor has already found something potentially missed on one of my MRI scans which could be the cause of the Dystonia like symptoms I’m having. You know, all this is very much a two sided coin, on one side is the GP’s and Consultants that have messed up more than once and repeatedly, if not for those cock ups I might not be in this situation today or not in as bad a situation but on the flip side, I am incredibly grateful beyond words that they have saved my life five times now. I’ve had to remind myself that these Physicians are humans just like you and me, we put a great deal of faith in them but I’ll repeat the first few words of this sentence, they’re human just like you and me. That’s not me saying, oh it’s ok to mess up, I’m just saying they can! Anyhoo, let’s move on to the good stuff eh?!

So I’ve known Paul Robbie for many a year, he has a garage down Haugh Lane in Hexham, that’s 25b Haugh Lane to be precise *Plug* Back in the days when I was starting out as a young driver buying half knackered cars and some that can only be described as dodgey, Paul had the pleasure of digging me out of a few holes! He used to laugh at my enthusiasm and how much I loved my new, next to near scrap heap of a car. I also know his sister Lynne Robbie, Christ where do I start about Lynne?! Lynne has the biggest heart and is forever arranging workshops and table top sales in Bardon Mill/Henshaw. I met Lynne one night years ago at a mutual friends house, we were all there having a spiritual reading done, we instantly hit it off, we were the Chatty Cathy’s in the room with the loudest laughs! Then we met again a short time later at the Vets I worked at and still take Dylan, Tim Pearson, Orchard House Vets *Plug* and we just kept bumping into each other on nights out, theatre trips, fairs, you name it! I think it’s safe to say we’re friends now! Hahaha Anyhoo, Lynne saw me having a rant about GMAC and Vauxhall, she had a natter with Paul and asked me if they could look at all the paper work I had. Next thing I know there’s a letter winging it’s way to GMAC which took a bit of heat off for a short time because at this point GMAC were either ringing or writing everyday, Lynne also wrote to Don Littlewood and Watch Dog in an attempt to loosen the noose around my neck as there’s a legislation coming into play soon about handing your car back in certain situations. I’m sure I mentioned that the amount of stress I was put under was triggering seizures that they believe are Petit Mals, I’ll park that one there for now cos that’s another blog in the making, no pun intended! So in the end, I still wanted to savour some pride and do GMAC out of their, you’ll be 62 by the time you finally finish paying it off plan, and I sold it back to them which meant finding £2,898.46p. Me and my family accumulated our credit cards to get the bastards and their debt collectors off my back but of course, all I’ve done is swap one debt for another, it still needs paying! My Uncle Dougie drove me to Bristol Bastard Street Motors to do the deed, they’ve always been lovely to me in there, in the past I’ve given them biscuits, chocolates and flowers for helping me out and giving good service but that day none of them could look me in the eye as my Uncle Dougie wheeled me in, I don’t think they thought it was right either. We had our say and as my Uncle Dougie drove me back home he gave me a talking to about how I’d eventually pay the cards off and how I could focus on my rehabilitation now and that in the future who’s to say I can’t drive again, get your mobility and strength back and then look to get a suitable car NOT FROM BASTARD VAUXHALL who are soon to be Peugeot anyhoo! You see, my Uncle Dougie recognised that the tears that were falling weren’t for the piece of red metal, they were tears of sorrow because that piece of red metal was a symbol of my independence and freedom ……

Another little singing ray of light was my little pal Kim Cooper, Manchester lass living in Wales. This kind soul setup a Just Giving page to help me pay some of the debt off. Unbeknownst to me, my fabulous friend Andrea Ashcroft had contacted Lynne (I tell you man, I can’t get shot of her! Lol) about setting up a page too but Quick Draw Kim McGraw got there first. Admittedly, I was dead against it, I kicked and fought with it for the sole reason that I am always the one to give, never receive, I wasn’t ungrateful, far from it, in fact I was floored and brought to my knees at the sheer thoughtfulness, love and support people wanted to give me, Kim won hands down the other night when she flipped the tables on me and said, if it were anyone else would you have done the same thing! DAMN IT!! How did she get all the aces in the deck!? So now there’s a plan in place to pay all the cards off. The problem is I’m too conscientious and worry far too much about what people think, even after many a talking too! After writing this today, I hope the car etc is dead and buried because I’m spent, literally. The lovely Ali Armstrong is always sending me and Mam distance healing, Facebook page Ananda *Plug* whether you believe in the power of the universe or not, it brings me great comfort, through Ali I discovered another lady that I try and catch each morning on Facebook called Carol – Mystical Moments *Plug* Today Carol talked about letting things go {Cue waving arms and Disney singing} from the past, so I reckon that’s what this blog helps me to do, so I shall keep twisting on until I’m twisted out – that’s never gonna happen, is it?!

I also have to do another shout out to Lynne, Paul and Cameron for handing me back a bit of independence and self worth. My Mam is 5ft on a tall day and has really painful bandy legs, we always said she’d never catch a rabbit! My personal diagnosis is arthritis or she needs knee replacements, E L Clark MD! Now anyone who’s pushed a wheelchair will know how difficult it is and I’m sure I’ve mentioned it, if so I’m telling you again, I feel incredibly guilty and burdensome having people push me around. I don’t enjoy it, although I love to be outdoors and love seeing folk, I find it depressing and soul destroying just sat there and knowing the pusher is knackered, I know I’m wicked and ungrateful for saying that because there are folk far far worse off than me but I used to thank the lord when it rained on my Mam’s day off so I wouldn’t have to go anywhere or have her push me about, she used to be gutted when it rained because she knows how little I go out, 11 times and counting, she’d even feel guilty but deep down I was relieved. Mind you, some of that was anxiety and fear too, I can’t lie, it’s frightening out there as much as I want to get amongst it all. You see, I’m safe indoors, my feet and brain can register indoors and I can pull myself about quite happily, outside is scary, there’s noise, atmosphere and ground that my brain jumbles all up and doesn’t compute, I also have very little balance because that part of my brain is damaged too, my feet don’t like shoes either, my Mam will laugh because as much as I love shoes and have about 60 pairs, if I could walk around barefoot everywhere I would! So it was mentioned to me very gingerly as “This girl can!” may just nuclear explode with contempt if one more person or consultant MERELY suggests she may never master walking again, about getting a power chair or mobility scooter. I disarmed my missiles momentarily and pondered. Then the natural researcher in me started to try and do a bit of a recce with the help of my reading assistant (my Mam) Jesus, Mother Mary and Joseph and the bloody donkey that took them there! They’re expensive to hire once you add up the monthly costs, the same with the mobility scooters, you could actually buy three if you added up how much you paid over a year! I was telling Lynne all this, I know, her again! Lynne’s since passed Dad had a mobility scooter and her Mam Pamela still had it, after a chat and a tinker and a spruce up by Cameron, there was a surprise drop off, a surprise because there were no keys through my door nor was there a mobility scooter in my garden. Daft Paul had left it at the wrong house so it was definitely a surprise for the girl that lives there when my Mam and our neighbour Margy rocked up looking for it! I think Paul had kittens! Amongst all the chaos, the gorgeous Lisa Knapton who owns Tynedale House Clearances, 26a Haugh Lane *Plug* arrives with a beautiful Citrine ring I was admiring on her Facebook page, bless her heart, Citrine is a friendship stone amongst other healing properties, I just love it! As Colette said the other day, folk are only paying back what you’ve given over all the years so I feel a bit better about the flow of abundance!

So, after 9 months I finally got to go along on a walk with my beautiful Dylan the Villain and throw the ball and even chase after him, I was tearing it up Fast and Furious style-E! The video is at the bottom of the blog. I even ventured into the Town that Saturday and what a difference, I was doing doughnuts in the middle of Poundland for a little old dear who’s definitely going to get her own scooter now and not struggle on with her walker, I even had the courage to nick off with our Vicki (Thelma to my Louise) to get her prescription at Boots and say a quick hello to Kathryn, though my Mam came and found me a short time later just in case but what a difference to have a small piece of independence back, I can’t thank the Robbie’s enough! Though I have to report back to Paul today and deliver the bad news that my little Red Baron has sadly died whilst I was climbing the hill home, luckily good old Mam caught me and Nathan next door pushed The Red Baron home but there’s a plan forming to get another! So watch out for the sequel! You know what, joking aside, after everything I’ve been through, everything to be flung at me, all the angst of cars, finances, worrying what folk think, shitty so called friends, epic tremendous friends that I’m yet to tell you all about, family, my Mam, my little furry angel Dylan, fighting Consultants to get the correct treatment and being determined to prove the fuckers wrong and WALK and DRIVE and everything else they say I can’t do, I am very very fortunate, beyond grateful and so incredibly overwhelmed to be on this adventure cos what a ride, what a tale to tell, what a challenge! I’m offering life out – C’MON THEN IF YOU THINK YOU’RE HARD ENOUGH!! WHO ARE YA!! WHO ARE YA!! Remember who you’re dealing with, this girl can and I am that girl! BRING IT ON!!

🎶 This wheel’s on fire, Rolling down the road. Best notify my next of kin, This wheel shall explode! 🎶

Betty’s Granddaughter ….

Hello, yes it’s me again! She came back! I can’t possibly write or dictate in my case, another word until I have thanked you all for the response and encouragement of my last blog! Thank you! Blown away to say the least! So today started off like any other day, Dylan the Villain up to villainous things, being shouted at, the sound of running water in the bathroom and a fluffy excited 32kg deadweight upon my chest, good morning Dylan! Then my Mother’s voice, he’s been naughty again, he stole a sock! Then it’s a death defying slalom to get down the stairs, Mam goes to work and Dorothy my carer arrives to get me ready for the day, including breakfast. Nothing unusual or out of place there. But today is a different day, I can’t call it special, I always feel that implies something great and out of the ordinary, though maybe today should be described as special now that my mind has just drifted back to that day? Today marks 3 years since my Nanna passed away, I can’t say died because she’s still very much here and alive inside everyone of us. My Nanna was special to us all in so many different ways but I’m going to be selfish and tell you about MY Nanna.

Out of respect for my family, I will not and cannot go into much detail, I’m going to be in hot water for sharing this much but I promise you, you’ll feel richer for reading. The 11th April 1932 Elizabeth Isobella Middleton was born, she married John Featherstonehaugh Clark and was known as Betty Clark, here starts the life of the most strongest person I am ever to meet! It was a hard life and I don’t mean that lightly, men worked but the women worked harder, big families, illnesses, deaths, violence, abuse and kids went hungry. In society now, we give these things fancy names like domestic abuse, in those days, you got brayed, it’s exactly the same thing though and just as awful. Most of us have read Catherine Cookson’s Fifteen Streets, well, I need not say any more. I have never heard a story like my Nanna’s and I pray I never do. You’ll learn where my dark sense of humour comes from as you walk along with me, hopefully! Please stay! 
When we all get into full swing of reminiscing which isn’t too often, there’s always a story that pops up. It’s about the Toby Jugs that sat above the living room window on the wooden pelmet. There were once 6 Toby Jugs but out of necessity to feed her 5 kids while Johnny splashed the cash on a night out, she’d pawn a Toby Jug. She’d spread the remaining jugs out to hide the gap but live in constant fear my Grandad would notice, a few Toby Jugs found their way to the pawnbrokers and my Grandad never ever noticed or found out, she took that and many more survival tactics to her grave and we smile and belly laugh at some of the tricks she had to pull. Unfortunately, those laughs quite quickly turn to sadness, resentment and yes, anger for what was allowed to pass. 

I have mixed feelings about my Grandad, it’s like I loved two very different people and I’m guessing it was like that for Nanna too but on a much grander scale. I loved him yet I cried many heartbroken tears for how he could and had been. My Grandad was a hard and sometimes cruel man, having been brought up in a cold hard era, he suffered abuse, i remember being told about my Great Grandma Clark clenching her fists, rolling her sleeves up and asking him to choose between instant death or long term sickness. There was always a joke made of it but it was so very true. He was a educated man, he was a scholar, I learned a great deal from him and this is where you’ll all think I’m away with the fairies but my Grandad was just as much the gentle, kind loving man who taught me wood work, about Kings and Queens, about the pioneers of the North East and a multitude of things, I could keep listing and listing. He smacked me once when I was 3, my mam moved out of the family home and we got our own flat, I bloody loved that flat, even if my teddies bottoms did get stuck with ice to my windowsill and had to be chipped off and defrosted in front of the fire in winter. It gave a whole new meaning to bottoms up! My Grandad sent for us a short time later and he apologised and promised never to lift a hand to me again and he presented me with a wooden sledge he’d made, my Mam refused to move back but he was as good as his word and never smacked me again. I’ve made peace with my Grandad over the years and I did love him. 

When I was 19 and I had gotten my first proper stable job, training to be a Veterinary Nurse, my Nanna left my Grandad for good.  

Oh how life took off for her. She had her own little granny flat, decorated how she wanted it, she bought clothes, shoes, even “scent” with the little bit money she had, if she really liked something she wouldn’t just buy one, oh no, she’d buy it in 3 different colours, I’m giggling away to myself here, nearly everything was green. She went to the bingo, in her words she’d say “your Nanna was a jammy get, it comes in threes Elizabeth so I’m going to bingo again tonight” and sure enough it did, whether a bingo win or lucky scratch card or tombola, she’d win it lad. See, my Nanna slipped out again there! She even won the lottery you know, not the jackpot but seriously, she did, she got a few numbers, it wasn’t big money that week but she won it and gifted almost all of it to her kids, bless her. She looked after nearly everyone in that sheltered accommodation, she walked up a great big hill to go get them fish and chips on a Friday, she did little bits of shopping for them but one of my favourite things I must tell you, so please hang in there! In the big day room downstairs where they sometimes played bingo, it was decided that the local dementia group would meet there to do crafts, listen to music and play dominos and such likes. My Nanna very much feeling the need to fill a void offered her services, it went from sitting nattering to the old dears to her helping in the kitchen washing dishes and taking tea towels home to wash, to waltzing to all the old classics to THEN getting her NVQ. Yes that’s right (Oooow, I’ve just got goosebumps writing that!) at 79 my Nanna got a NVQ and became a fully pledged volunteer! When the dementia club first started up, there was a residents meeting as a few weren’t very happy about them meeting there. My Nanna was stopped on the stairs one day by a neighbour and was told it wasn’t right having all these insane crazy people in their building. Well, I can tell you, that lady was handed her pedigree right into her hands. “Don’t you go around calling them that, be careful what you say, it can happen to anyone of us!” 

Years later that lady joined the club as she had developed dementia ….

I could write about her for hours and hours, days in fact. I often got called Katie or Katie Jane but I mostly got called Flossie and when I later decided to inflict my art on to the world, I wasn’t courageous enough to expose myself for fear of criticism, I named my artists page and work, Flossie Inspired because she truly inspired me. 

I was very proud of my family the week leading up to her passing, we all piled into her tiny granny flat, we let the Hospice at Home nurses go, though we’d only had them a few nights, we cared for her ourselves, it was a promise my Mam had made her many years ago, that she’d never see inside a nursing home and I think my Mam is very proud that she could fulfil that. We decided as a family it would only be us at the end, no carers. Me and my Nanna loved to sing, my Nanna used to sing to me as a baby and there was always one song that got belted out. We’d sing in the car on our days out and I even joined a choir at one point. I remember the afternoon well, I was sat on the seat next to her bed and we had her music on, we were singing and holding hands and she kept waving my hand back and forth in time to the music, we were singing Elvis, the man is a god to me but that’s another story for another day. Suddenly I could not hold the emotion and hurt back any longer and my voice broke, that damn pesky lump in my throat the size of Australia nearly cutting off my airways, snuck up on me and my mask of bravery disintegrated. You might not think it a tender moment but my Nanna said “nu come on now Flossie, we’ll have less of that, nu stop crying, you’re going to miss the chorus, sing!” so I did, very poorly and very difficultly, it was more of a rasp than anything. 

Passing can be a slow process, we each took turns to sit with her and say our peace, I was particularly proud of my Uncle who is a man of very few words but once something was on his mind he’d be up, grab some tissues, tap the person on the shoulder to shift and he’d sit and share his thoughts and love with her in private, though she always knew how loved she was, it was more about us giving her our final love and emotional gifts to take with her. Everyone was comfortably far enough away to have a little privacy. When I sat with her I never had anything to say because I’d always told her throughout her life, we used to have little chats you see, so I sat and thanked her and reminisced about trips to Whitely Bay (I have a bag of sand from Whitley bay that I plan to put on her resting place once I can – Shhh! I know it’s naughty!) and how we were going to sail to France on the boat moored on the Quayside which later became a floating nightclub. I did however thank her and apologise for being an arsey teenager and sobbed when I said my only regret is that she’ll never meet my children if or when I have them. That seat next to her bed was never empty for even a minute throughout the day and night, for days we lay on the floor, accidentally kicking each other or crumpled up in a chair, one night I slept for 2 hours on the visitors chair in the corridor outside my Nanna’s flat. On the 18th of July, just after 4pm my Nanna found the strength and courage to leave us (goosebumps again!) THOUGH the buggar nearly left without me and my Auntie! I had nipped to my Auntie’s literally up the road to have a very quick shower, we got back just in time, my hair was still soaking wet and I have to confess Nanna, I had no knickers on when you left! She passed away on this day, surrounded by us lot, the lot that usually can’t be in the same room together for 5 minutes without shouting and arguing, in her own home, in her own bed, with the birdsong dancing through the open windows, the shadows of “that bloody tree” outside projected onto her green carpet (she always threaten to chop that tree down!) surrounded by respect, admiration and love, on this very day. 

When I was rushed to hospital back in January, I couldn’t feel her near me and I was getting myself upset, a male nurse was making the bed across from me in the dependency unit and he was whistling and humming away to himself, I instantly recognised the the song, as he walked past my bed I said with my best speech I could muster, you’re quite young to know that tune and sounding like a Nanna myself, he replied what tune?  

The one you were just whistling and humming.

Was I?! 

Yes, for a good 10 minutes.

He giggled and walked away completely oblivious. The tune was Bring Me Sunshine and was featured on the Morecambe and Wise Show that I used to watch with Nanna and Grandad, he taught me the paper bag trick and if you don’t know the paper bag trick, I suggest you get yourselves onto YouTube or Google it and find out! I looked upward and smiled, aye, she was there alright!

So who am I, well I am that girl but I’m also Betty’s Granddaughter.

🎶 Que sera, sera, Whatever will be, will be, The future’s not ours to see, Que sera, sera, What will be, will be …. 🎶

I am that girl ….

I thought I would introduce myself, I’ve never had a blog before, though I am a dab hand at Facebook and I’ve usually used that as a vessel. I’ve always threatened to start a blog and post my many calamities, triumphs, traumas and years of heartache and wonderment. I’ve also threatened to write a book! What has spurred me on is that I have recently become unwell, my life dramatically changed over night. On the 14th of December 2016 my life took a turn for the worse, for the worse or for the better? Now that’s a pondery and still to be decided! I have faced some incredible difficulties and adversity over the years, heartbreak and utter devastation, I’ve also been incredibly blessed to have met some wonderful people along the way, I’ve enjoyed life and given back as much as I was gratefully given, I believe that all that love, struggle and strife and heartache, all the ugliness in the world and overcoming incredible hardship has prepared me for this journey that I’ve found myself on. Not only how far I’ve come but what is still lying in wait for me. So back to December 2016, I sustained a head injury that ruptured my left ventricle artery in my brain, this caused a haemorrhage and a rare type of stroke, that day I should have died instantly upon it rupturing, the damage to the artery is 3-4cms, now that’s some injury! For whatever reason I survived but over the next four weeks I suffered TIAs which are commonly known as mini strokes, where the artery was trying to heal itself and tiny clogs were breaking away and being washed along with the blood flow. I was having a mini stroke every 1 to 2 days so I’d feel champion one day and barely able to move the next. Three GPs misdiagnosed me on three separate occasions, I was given various diagnoses, including suspected meningitis (ruled out quickly) labyrinthitis, a virus and even flu, I was living in a fog and holding onto walls and furniture and I experienced weakness in my limbs, it’s a good job there’s photographs of Christmas and New Year because I barely remember them, a part from a fleeting thought of, Mmmmm, I love parsnips!

In early January I had the most horrific experience that I find extremely difficult to put into words, I lost consciousness and when I came round I was paralysed down my whole right side and unable to talk. I was at hospital on the stroke dependency unit, a consultant had the difficult task of trying to explain to me what was wrong and forming a timeline to determine what had happened. I had had another Haemorrhage and a second much bigger rare type of stroke and if that wasn’t enough, 5 days later I was to suffer a third haemorrhage and a third rare stroke after being told that these types of strokes and injuries are so extremely rare. They’re only seen once every 18 months and often by people fatally injured in a car accident or a motorcycle accident. How I am here, I truly do not know and neither do my team of Doctors and Consultants. If that wasn’t enough in early March, a clot from the original injury was migrating and heading for my lungs and my heart, I was blue lighted to the hospital where they saved my life again by giving me a drug called Alteplase and I was thrombolysed. That in turn was a very difficult call for the Consultant that day. I had a 50-50 chance of survival having the drug, the reason being because of the haemorrhages and the type of rare strokes, plus I had a clotted injury that needed to be there to heal! There was no decision in my eyes, I chose life, like I say, to me there was no decision to make, I wanted to live! I had already defeated the odds more than once since December so I was going for broke! Six hours later the drugs that had just saved my life, then decided to try and take my life and I went into shock. I had a weak but rapid pulse and laboured breathing, I lost consciousness and I had to be resuscitated. In the middle of all of this and unbeknownst to me there was a BBC camera crew there filming every step, so even in the grips of death there I was on the BBC1 documentary, Inside Out. It’s official, this girl doesn’t do things by halves!

Over the last 7 months I’ve been retraining my brain/body, from little things like trying to get fingers to bend to relearning to read and trying my very hardest to walk again. I do a fabulous crawl on furniture and can manage one or two wobbly Bambi steps but often I need my zimmer frame and I definitely need my wheelchair to get out and about, though I’ve only been out of the house 7 times and counting since mid-December, not including blue flashing lights and high speed ambulance rides. I have short-term memory loss due to damage to my left temporal lobe, so I might repeat myself quite often so bear with me! I don’t have much mental capacity at times, some days I’m trapped inside my own head and unable to explain what’s happening, other days all the switches are turned on and it’s green for go, it’s the same physically, one day I can wobble and drag myself across the sitting room on the furniture, the next the switch has flicked and I can barely hold my phone in my hand. In the beginning no one knew what was wrong with me not even the GPs who misdiagnosed me. Unfortunately some people in my life decided to call me a liar and even when a more informative diagnosis was given, they still continued their quest to discredit me and deem me to be an awful person. It wasn’t me who showed their true colours! Thankfully, they are very much in the minority and the support, love and care that I have been given over these months is phenomenal, absolutely phenomenal! I have a whole wall covered in get well cards, I’ve had fresh flowers every day for the last 7 months, apart from one single day just recently, there’s not a day goes by that I don’t get a message, a phone call or a request to visit to see how i am or ask if there’s anything they can do for me, though the visits are few and far between because they all have such busy lives and there has been times I’ve been too poorly, but they’re still there and it will get easier to interact and socialise as I continue to recover. I’m sat at the sidelines of life right now but I am so incredibly thankful and blown away by everyone’s support, even in my darkest days my heart swells! On that morning in mid December I lost a great deal of things that right now, I can’t possibly begin to explain but I somehow have become richer. I’ve had people step up to the mark without even being asked and support from people who I didn’t even think I mattered to. Don’t get me wrong, it’s an incredibly lonely time, in fact, I’ve never felt so alone in all my life but I don’t feel sorry for myself, I never have but if there is one person on this planet strong enough to overcome this then bah, Christ, it’s me! So I say, bring it on!

My saviour and constant companion is my one-year-old black Labrador, Dylan or also known as Dylan the Villain and most recently, Devil Dick! It was saving him from a rapid river that had burst it’s banks that may have caused my injury. Having a head injury with all the complications etc the Doctors were concerned about the loss of Serotonin which they described as the happy chemical in your brain, obviously I’ve lost a lot of the Serotonin with the three big Chrysanthemum type firework bleeds in my brain, they also spoke to me about Post Traumatic Stress Disorder and promptly put me on the “watch” list. Even though I’m so incredibly, incredibly thankful that I am alive, they worry that sometimes people can feel differently and feel so overwhelmed and lost that they want to take their own life. I truly believe that Dylan has prevented me feeling any of those things so far, most days he is my only company a part from the fantastic carers who help out twice a day, he is my constant companion and gives me unconditional love, it doesn’t matter that I’ve got tatty hair and I’m still in my Harry Potter pyjamas, he doesn’t care he just wants to snuggle and have the crust off my morning toast. So you’ll hear a lot about him!

This might sound a bit crackers but being poorly is a luxury, we live in a world today that runs on money, as much as that pains me to say, it’s a cold hard fact! I haven’t just been sitting at home convalescing, eating grapes and holding audience, far far from it, the sad truth is I literally don’t have two pennies to rub together as my dear Nanna would have said. I’ve been kept from focusing on my recovery and achieving my goals because of constant phone calls from the likes of GMAC about car payments and repossession, even though I’ll never be able to drive that car again. I don’t get sickness money from work, I get Statutory Sick Pay and I’m sure a lot of you know that’s nothing to live on never mind paying for cars etc These companies don’t care what you’ve been through, they don’t care that you should have died 5 times in 7 months, there’s no empathy, there’s no sympathy and I have to admit that there has been days, despite my little Dylan the Villain, where they have pushed me over the edge and it chokes me to say, I’ve exclaimed those horrific words, I should have just died! I know, horrendous! Along with the head injury I’ve been having seizures and the constant phone calls have stressed me to the point of bringing on multiple seizures but that again counts for nothing, they want their pound of flesh and anyway that they can get it! I’m 38 and I’ve never ever been in this position before, I was made redundant in my early 20s through no fault of my own and I signed on at the dole office and three days later I signed off because I can turn my hand to anything when needs be, I went from Veterinary Nurse to jewellery girl because needs must. I have succumbed to trying to claim benefits and let me tell you, the information doesn’t come freely and you have to ask about and rely on people who have been through a similar situation to give you a guiding hand. I’m living back home with my Mam and we are surviving solely on her wage.

Anyhoo, who am I? Well, I am that girl! I am a big animal lover, I love the outdoors, I’m an artist, published twice I’ll have you know, I have been a part of amnesty international since I was 15 years old, campaigning for human rights, I love music and the arts, I’m very much a giver if I do say so myself and recently have discovered that I am actually extremely hard on myself and should maybe care for myself the way that I care for others. What else can I tell you, my favourite colour is blue, I was quite partial to a soupçon of Prosecco before I became ill, I love people, I love life when it’s not dealing me a shitty hand, I’m an ordinary type of being, not that special, often overlooked but if this can happen to me, it can happen to anybody. I’m hoping this is going to be quite cathartic for me but I’m also hoping that anyone reading this can relate and seek comfort that they’re not alone. Maybe someone who is possibly feeling exactly the same way as I am, maybe I can even make them laugh and smile, who knows. There is no such thing as an ordinary day in my life, what’s a normal day? There’s never been a normal day, even before the accident, there’s always a story to be told and nothing is ever straightforward with me! Behind the laughs and the smiles and the terribly dark humour, there is also sorrow, sadness and pain. The little Miss “Fix It” the “go to” girl, the one that’s always there to dig you out of a hole, is now that girl herself and believe you me, this crown doesn’t sit comfortably upon my head. I’m the girl that kept knocking on Heavens gate but St. Peter was either out shopping at Aldi or hiding behind the sofa whispering, don’t let that nutter in! I want to participate in life again and no one is going to stop me from doing that, there’s days I need a note from my Mam to say my P.E kit is in the wash but there are also days where I can write my first blog. Life is for living and once I’m off this spectators bench and back in the mix, that’s exactly what I intend to do!

As Steve Tyler the rubber lipped rock god himself once said, life’s a journey not a destination ….